well Whitney is not doing much better since the endoscopy. We even had to stop the erythromicin on Sunday because she was throwing up so much. By Tues she was back to once a day. Yesterday she had her synagis shot. Probably the last one of the season and forever. Which I'm pretty much okay with since I hate traumatizing and torturing her. I think next season she will be strong enough to handle a sickness. I hope. Today though she did throw up three times. Twice at dinner while she was eating some Ramen. She was doing so well, too, then she gets a long piece and starts gaging and vomits. She still wanted the soup and yet again gags and vomits more. She still had a whole belly full of liquids. She took a few more bites of the noodles then pushed it away. Then I finish feeding her her meal and she took a little bath in the sink. She went to bed pretty quickly though. We have an appt with the GI on tues. The dr. knows that I've been calling and asking about Whitney getting the GJ tube so we will discuss it then. I'm desperate for her to gain some weight. She's only gained 2oz in 6 weeks! That's pretty much called losing weight. It makes me sad to see how skinny she is. At least now we now why she has such slow motility and keeps vomiting all the time.
Also Whitney had OT this week and she did great. It was a brand new therapist since our previous one went on maternity leave. I was so surprised how well Whit did! I don't know why she disliked her old OT so much though. I hope to keep with this OT for a while now!!
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