Newborn: diagnosis right-sided Congenital Diaphragmatic Hernia. Missing 75% of the right side diaphram. Liver and intestines in chest restricting lung growth and pushing on heart. 1 in every 2500 births. 50% survial rate. Whitney = 20% chance survial.
6 pounds 10 ounces
Immediately intubated. On ECMO (Extracorporeal membrane oxygenation) Day 1 of life till Day 6. CDH repair surgery on day of life 7. Recovered and healed. Received formula via NG tube. Learned to drink from a bottle.
Stayed in NICU (nursery intensive care unit) for 56 days. Came home at 2 months old oxygen dependant.
Three months old
Start at home physical therapy and feeding therapy
Four months old
Diagnosis: Failure to Thrive, severe reflux, aspriation
Five months old
admitted to hospital for NG tube
on prevacid (acid reflux), bethanechol (control esophagus), and Alimentum formula (hypoallergenic)
Six months old
did not tolerate Alimentum
discovered a goat milk formula
start solids
Seven months old
Whitney vomits one to two times a day.
12 pounds 13 ounces
Eight months old
Only drinks from a bottle while asleep and takes 2-4 oz at a time. 90% tube feed.
14 pounds 2 ounces
Nine months old
15 lbs 2 oz
Ten months old
off of the oxygen and still won't eat solids
on Goat milk formula and no medications.
15 lbs 7 oz
Eleven months old
Switched back to Alimentum, vomits every feed for 6 days.
Prescribed Neocate Jr. unflavored and tolerates it with once a day throw ups.
15 lbs 13 oz
Twelve months old
On NG tube for 9 months. I think it makes her gag and vomit more, and makes oral aversions worse. Will be getting a G-Tube soon...
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