Whitney went to her speech/feeding therapy today. The therapist K. also does Craniosacral therapy to help Whitney relax her neck and shoulders and ribs. She put Whitney in the high chair and had her dip spoons and a toothbrush in water and then in flavored water. Whitney did really well with that and actually drank it from a spoon! Then the therapist K. put some puffs on the tray and tried to get Whitney to eat them. She took a few which is better than what she does at home. I'm surprised that Whitney didn't gag on that and throw up! It was a pretty good session!
Usually Whitney loves to eat shredded cheese and some noodles or rice, but the past couple of weeks she just throws everything on the floor. K. said to teach by playing a game with her to show her put things in a bowl or cup or my hands so that she doesn't just throw her food and spoons. One time Whitney let me put little pieces of ham in her mouth and she seemed to like it and didn't even gag!
I'm wondering if that with this strict feeding schedule, that Whitney just isn't hungry at all and to try to eat more just makes her want to vomit. So my delema is do I skip a feed to try to get her to eat solids or just keep pumping formula in her so that she gains better weight? Right now she gets 800 mL's - 840 mL's a day of 30 kcal formula which is Goat Milk formula at night (200ml) and Neocate Jr. Unflavored during the day (600-640mls). She vomits one-two times a day about 4 oz. GI Dr. M (or his nurse) says that's okay as long as she's gaining weight....would she gain more weight if I fed her less and she didn't vomit so much? Or is she just vomitting because of the tube in her throat? When we first started the Neocate Jr. Whitney went a full week with out throw up! Well I have two more weeks to figure this out before she gets her G-tube. I'm thinking I just want her to gain more weight and be strong for the surgery, then try the blenderized diet and when she's healthy and strong try to ween her off the tube.
Today Whitney is 12 months and 3 weeks old and weighs 16 lbs 13 oz.
Here is a video of Whitney trying to eat a MumMum's cookie carmel flavored
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